A five-year national initiative
The 100,000
Initiative.
A national effort centered on identifying and better understanding the approximately 100,000 people living with sickle cell disease in the United States.
100,000The initiative begins with a simple idea: visibility matters. Better understanding who is living with sickle cell disease — and where — can help strengthen the foundation for action, accountability, and investment.
The framework
Built for measurable progress.
This page is intentionally structured as a strong editorial introduction today, with room to expand into initiative goals, milestones, partners, progress reporting, and calls to action as final content is provided.